Like many women, popular fashion and travel blogger Jessica Stein, better known as Tuula Vintage, couldn’t wait to be a mother.
Along with stunning photos of her envious travels, Jessica also chronicled her pregnancy through her Instagram account.
The Sidney, Australia native was very candid about her worries and posted them in her photo captions.
Jessica didn’t know that when her beautiful baby girl would be born, some of those worries would also come to life.
Rumi Willis Cooper was born in March with an extremely rare chromosome disorder called Mosaic Trisomy 2.
The US National Institute of Health characterizes Mosaic Trisomy 2 by having an extra copy of chromosome 2, caused by a completely random error in cell division when an embryo is first developing, bringing the total to three copies of the chromosome.
Symptoms of Mosaic Trisomy 2 vary and include congenital heart defects, growth and motor delays, and other abnormalities.
It is so rare, that geneticists believe there are only 2 or 3 cases of the disease in the world.
Jessica and Rumi have spent nearly the last year living in the hospital after Jessica’s water broke in November and she was put on bed rest at 24 weeks.
Then came the unexpected expenses of caring for a newborn with a rare disease.
Jessica and her husband Pat are not able to work and the medical bills keep piling up.
At one point, they had $202 in their bank account.
The couple didn’t want to go public with their financial struggles, but came to the realization asking for help was all they had left.
“Pat and I would like to stress how uncomfortable we are to be asking for financial help and want to be completely transparent,” Jessica wrote on the Go Fund Me page. “Unfortunately, all of our savings are long gone. We have already borrowed a few thousand from family to tide us over, but rent is due yet again and we currently have $202 between us.”
“We have lived off what little savings we had, prioritizing paying the rent for a house we barely get to live in and frozen meals each day while we split shifts in Hospital. Pat tried to work casual hours with a friend doing laboring, but never finished a day without a call from me in the Emergency room or in the back of an Ambulance.”
Jessica and Pat had set a goal of $100,000 but that goal was surpassed in the first 24 hour period.
In fact, the couple has received more than double the amount they had originally asked for and thanked the generous people who donated money to help them.
“The heavy knot that has been in the pit of my stomach for months on end is now lodged in my throat; I am lost for words that will ever carry the weight of what this means to us,” Jessica wrote. “Thank you. Thank you. Thank you.”